HOME ABOUT CONTACT AVAILABLE ISSUES SUBSCRIBE MEDIA & ADS
LATEST UPDATES » Vol 23, No 06, June 2019 – Clinical trials — What's in a name?       » Study reveals mechanism behind ginger's warming effect on body       » China proposes major changes to pharmaceutical regulations       » Six plants native to Southeast Asia are promising cancer warriors       » Cancer cells are addicted to methionine       » World's first molecular swing      
EYE ON CHINA
Database being established for rare disease sufferers in Shanghai
Estimated 173,000 people are living with rare diseases in Shanghai

The city has started to set up a database for people with rare diseases in an effort to boost medical care, policy making, drug introduction and research and insurance coverage for this group of people.

There are over 7,000 known rare diseases in the world, with 250 to 280 new types detected annually. An estimated 173,000 people are living with rare diseases in Shanghai, while there are about 20 million across the nation.

Rare diseases are usually related with different systems and organs, causing chronic and progressive damage and resulting in lifelong suffering, disability and even death. About half of patients start to develop symptoms upon delivery or in childhood, and 30 percent die before age three.

These patients need long-term or even lifelong treatment, but only six percent have medication and just one percent can be cured. Many medicines are very expensive and are not covered by local medical insurance.

To help people with rare diseases, Shanghai established the Shanghai Rare Disease Prevention and Control Foundation in 2014 to expand care and support.

So far, the foundation has established a list of rare diseases, published books on rare diseases, and boosted legislation for treatment and sponsorship. "Our goal is that all people with rare diseases can enjoy affordable medicine," said Dr. Li Dingguo, a medical expert involved in rare disease treatment.

Source: Shanghai City Government

Click here for the complete issue.

NEWS CRUNCH  
news Discover key nutraceutical trends in Asia Pacific
news Which country has the worst sleepers
news Asia is the fastest growing region for nutraceuticals
news 2018 Nobel Prize in Physiology or Medicine winners
PR NEWSWIRE  
Asia Pacific Biotech News
EDITORS' CHOICE  
COLUMNS  

APBN Editorial Calendar 2019
January:
Taiwan Medical tourism
February:
Marijuana as medicine — Legal marijuana will open up scientific research
March:
Driven by curiosity
April:
Career developments for researchers
May:
What's cracking — Antibodies in ostrich eggs
June:
Clinical trials — What's in a name?
Editorial calendar is subjected to changes.
MAGAZINE TAGS
About Us
Events
Available issues
Editorial Board
Letters to Editor
Instructions to Authors
Advertise with Us
CONTACT
World Scientific Publishing Co. Pte. Ltd.
5 Toh Tuck Link, Singapore 596224
Tel: 65-6466-5775
Fax: 65-6467-7667
» For Editorial Enquiries:
   biotech_edit@wspc.com or Ms Lim Guan Yu
» For Subscriptions, Advertisements &
   Media Partnerships Enquiries:
   biotech_ad@wspc.com
Copyright© 2019 World Scientific Publishing Co Pte Ltd  •  Privacy Policy